Thank you to Dr. Jeffrey Albaugh and Dr. Anne Katz for their expertise, content and guidance in putting this page together.
Prostate cancer is now the most common internal malignancy in men. The lifetime prevalence of prostate cancer is 1 in 9 men. With the more widespread use of the Prostate Specific Antigen (PSA) blood test for prostate cancer screening, 60% of all prostate cancers are discovered while still localized. Many urologists recommend radical prostatectomy (removal of the prostate gland and lymph nodes) as the treatment of choice for their patients who are younger and in good health and have localized cancer. Another common treatment option is radiation. One of the major side effects of either treatment can be urine leakage (incontinence).
Although urine leakage is temporary for many men after removal of the prostate gland for prostate cancer, persistent leakage is not uncommon. Patient surveys have shown a 39-63% prevalence one year after surgery, with 24-56% of patients wearing incontinence pads. The incidence depends in part on the expertise of the surgeon; more experienced surgeons have much lower rates. This persistent leakage can have significant medical, psychological, social, and economic consequences. Many men have said that incontinence was the most burdensome part of their experience with prostate cancer treatment.
There are non-surgical treatments available that have proven effective for many men with leakage after prostate surgery:
The presence ED and incontinence can cause both or either partner to develop depression or anxiety. Men who suffer from mild-to-severe depression or anxiety may find their quality of life effected or their immune systems compromised as a result. It’s important to recognize the causes and symptoms of depression and anxiety so they can be effectively addressed. You can learn more about how to address the psychological and emotional toll of prostate cancer as well as access numerous resources on our page, Anxiety and Depression as Related to Prostate Cancer.
Prostate cancer survivors who attend meetings—sometimes along with spouses/partners—find invaluable information and perspective from their peers who quite often have "been there - done that" relative to their experience managing the various aspects of prostate cancer. The interactive format of a support group meeting is an educational forum that facilitates conversations to exchange information among group members assembled with the common goal of empowering each other with the knowledge that comes from experience. Find an Us TOO support group meeting near you.
This phone call support group is for the women behind the men affected by prostate cancer. Because prostate cancer is a couple's disease, the woman is often subject to her own concerns in addition to those she shares with her partner. A Forum for Her will focus on women and offer peer-to-peer support to address these concerns. Get more information or join a call by contacting Terri Likowski at 336-842-3578 or firstname.lastname@example.org
Answer Cancer Foundation and the Reluctant Brotherhood
Prostate Cancer Virtual Support Group Calls
Using your computer, tablet or smartphone: Click here or paste the link below into your browser:
You will be using your microphone and speakers (VoIP). A USB headset is recommended for the best sound quality. To minimize background noise, please mute your mic when not speaking.
Using your phone:
Low/ Intermediate Risk Men & Caregivers
2nd & 4th Mondays of every month at 8pm EST/EDT (US)
High Risk/Recurrent/Advanced Men and Caregivers
1st & 3rd Mondays of every month at 8pm EST/EDT (US)
2nd & 4th Tuesdays of every month at 6pm EST/EDT (US)
Answer Cancer Plenary Calls Men & Caregivers
5th Mondays of every month at 8pm EST/EDT (US)
Answer Cancer - Caregivers
1st Tuesdays at 7pm EST/EDT (US)
3rd Tuesdays at 1pm EST/EDT (US)
The Reluctant Brotherhood
The Inner Conversation - Men Only
2nd & 4th Thursdays at 8pm EST/EDT (US)
When ordering products from https://urologyhealthstore.com enter promo code: USTOO and receive a 10% discount and free shipping on purchases of $50 or more. Your transaction will also generate a donation for Us TOO paid by Urology Health Store.
If you know of a resource that should be added to this page, or if you need help with issues related to prostate cancer, please call 800-808-7866 or email email@example.com.